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Atrial Fibrillation Resource on Maze Surgery

In Atrial Fibrillation Patient Discussion Forums, we mentioned the A-fibcures group, which focuses on non-pharmaceutical atrial fibrillation cures.

Much of the recent group discussion has centered on understanding the confusing and ever-changing landscape of atrial fibrillation surgery. Group moderator, Carl Plaskett, reached out to THE authority on the Maze procedure, Dr. Jim Cox, known as the “Father of Maze Surgery”, to provide some clarity around atrial fibrillation surgery.

Dr. Cox was kind enough to write up a brief white paper. It’s a fascinating look at where we are, and where we have been, in trying to cure atrial fibrillation.

Find out more and access the White Paper by Dr. Cox

Atrial Fibrillation Patient Discussion Forums

StopAfib.org was recently featured in an article on Patient Web Exchanges Provide Benefits, which talked about how patients with better social networks have better outcomes.

There are plenty of atrial fibrillation patient discussion forums and social networks. Below are some places you may want to check out, some of which I hang out at pretty regularly:

For future reference, these discussion forums are also listed here at the Atrial Fibrillation Blog, under Afib Forums, and in our Patient and Caregiver Resources at StopAfib.org.

For tips on joining and participating in these discussion forums, read this full Patient Discussion Forums article.

Please share any other atrial fibrillation discussion groups or afib social networks you recommend here.

Our Atrial Fibrillation Patient Resource Featured at Physicians’ Financial News

Our atrial fibrillation patient resource, StopAfib.org, is featured in Patient Web Exchanges Provide Benefits at the Physicians’ Financial News web site. The article is about the value of these patient web exchanges for doctors and patients.  Read more…

New Atrial Fibrillation Patient Resource: The Journal of Atrial Fibrillation

The Journal of Atrial Fibrillation is a brand new journal focused on irregular heart rhythms and on improving treatment of atrial fibrillation patients.

Dr. Andrea Natale is the Editor-in-Chief, and dozens of other well-known EPs and surgeons from around the globe serve as editors.

They will be adding patient info over time, but the first issue of the journal is up currently.

Learn more about it, including some of the well-known EPs and surgeons that are editors and the topics in the current issue, or just go straight to the journal.

Tim Russert’s Heart Attack: Was He Our Canary in the Coal Mine?

Since the shocking death of political commentator Tim Russert a few days ago, we have seen a huge outpouring of love and respect for this man who was so admired. I admired him, too, but this post is not about what his life taught us, but about what his death taught us.

Many of us with atrial fibrillation also have heart disease. Even those with lone atrial fibrillation may be at risk for heart disease. Thus this story hits close to home for many of us even though it’s not about atrial fibrillation.

We were shocked that Tim Russert was taken from us at age 58. Why, and how could that happen to one so young? Why couldn’t he have been saved?

While heart attack symptoms for men are usually overt, and for women subtle, there are some men for whom the symptoms are subtle as well. So for many of us, a heart attack is the first recognizable symptom. He may have had subtle symptoms that could have saved him had they been recognized and acted on in timethat’s how I had a different outcomebut maybe not as it’s not always possible.

We’ve since heard from Tim’s doctor that an autopsy showed that he had coronary artery disease and an enlarged heart, which is often a by-product of the heart having to work too hard. A cholesterol plaque ruptured an artery, caused a clot, and led to his death.

His coronary artery disease was being treated with medication and exercise, but medication doesn’t generally reverse significant heart disease and you have to question whether he was able to find time to exercise with his intense job.

He had just had a good stress test, too. Of course, passing a stress test is no guarantee of good heart healthit’s a reasonable screening test, but it’s only accurate at indicating heart disease in about 2/3 of men and only 1/3 of women.

Interestingly, Tim had just come back from a trip to Italy with his family to celebrate son Luke’s college graduation. Some doctor blogs have suggested this as a possible source of a clot. This hit home for me because my very first episode of atrial fibrillation was just a few days after my own long flight back from Italy. I had artery clots (not vein clots from “economy class syndrome”) and a close call with stroke. Tim’s trip to Italy could have played a role.

To me it seems that Tim’s intensity and relentlessly high standards drove him to literally work himself to death, the same as what almost happened to me. His colleague, Tom Brokaw, said, “He worked to the point of exhaustion so many weeks.” That sure sounds familiar.

It didn’t help that his role in “Meet the Press” was to confront. And the media business is stressfulalways on deadline and always trying to scoop the other media. The stress on Tim’s face told us that he was a heart attack waiting to happen.

Is Tim Russert the canary in the coal mine for the rest of the media? There are so many heart attacks just waiting to happen there. In one particularly heated Fox News debate about immigration, Bill O’Reilly was so angry that the veins on his face popped outI thought he would have a heart attack or stroke right there. His sparring partner, Geraldo Rivera, appeared equally angry and at risk. Come on, guys, take it easy! It’s not worth a heart attack!

The media isn’t the only occupation at riskthere are many other high-stress occupations as well.

What about you? Will this be a reality check for you? If you need to, will you make changes that will save your own life?

Heart attacks can be prevented. Eating right, exercising, managing the insidious stress that hijacks healthy habits, getting enough sleep, and taking proactive control of your healththe HEART Program’s five simple stepssaved my life and could have saved Tim’s, too.

If you need help, there are many books out there (including my own). Just do something to save your own life.

It was so easy to like and admire Tim, and he really made us think. He was always influencing and teaching us. May he influence and teach us in death just as he did in life.

AV Node Ablation: Why You Shouldn’t Have It

One topic, AV node ablation, makes the rounds of the atrial fibrillation discussion groups on a regular basis, and has just come back around again. All at about the same time, several afib patients’ doctors have insisted that they have an AV node ablation with a pacemaker implant. Thus they have come seeking others’ experiences.

In this procedure, the AV (atrio-ventricular) node is frozen or cauterized to stop electrical signals from being transmitted from the upper chambers, the atria, to the lower chambers, the ventricles, and a permanent pacemaker is implanted to control the heart’s electrical system.

Supposedly, at least according to some doctors, the AV node ablation will eliminate afib, or at least patients won’t feel it any more. Wrong, say many who have had the procedure. They still feel it, and they are just as miserable.

And whether or not you feel your afib, it’s still damaging your heart, and you’re still at risk of blood clots and strokes. Thus you’ll probably still be on anticoagulants, such as Coumadinâ or warfarin.

I don’t have anything against pacemakers – they do a great job of keeping people alive and of detecting irregularities. We’re lucky to have this technology.

But please, please, just don’t sever that AV node that connects the atria to the ventricles. It’s so FINAL. You probably won’t be able to take advantage of advances in medical technology, and if there’s a problem with your pacemaker, you darn sure better be able to get to an emergency room quickly.

So, lets see…

  • you’ll still have afib
  • you’ll still be at risk of strokes
  • you’ll probably still be on Coumadinâ
  • you’ll be pacemaker-dependant
  • you may not be able to take advantage of advances in medical technology

Now, why is it you would WANT an AV node ablation? Duh!

This controversy seems to be pitting patients against their doctors. One mentioned that her doctor thought she was obstinate for not wanting an AV node ablation. She’s not being obstinate. It’s her body, and she gets to make the decisions. She doesn’t want one, and considers the procedure prehistoric. She’s right!

Maybe for some patients it’s the only answer. But I suspect that applies to far fewer patients than actually get the procedure. Is this just another case of Clueless Doctors who are just not aware of what afib does to us? Or are these doctors unaware of all the other Options Available? Or is it an economic decision? I sure hope not. Is it naïve to still believe that doctors want the best for their patients and will help them find a cure?

What has been your experience regarding AV node ablation? You’re welcome to join the discussion, but before you jump over there, please share your thoughts and comments below. Thanks.

World Heart Rhythm Day and Arrhythmia Awareness Week

The Atrial Fibrillation Association in the UK, which is affiliated with the Arrhythmia Alliance, has announced that the Arrhythmia Alliance and the International Cardiac Pacing & Electrophysiology Society are partnering to celebrate Arrhythmia Awareness Week 2008 June 9th-15th and World Heart Rhythm Awareness Day on June 13th. These events are aimed at raising awareness of heart rhythm disorders and sudden cardiac death. 

More info…

Women Living with Atrial Fibrillation Magazine

Atrial fibrillation is different for women. It just is.

If you’re a woman living with afib, you know. You may want to read The Patient’s Perspective: Women Living with Atrial Fibrillation, a free magazine from the Embrace Your Heart(TM) Wellness Initiative done in partnership with StopAfib.org.

The purpose of this magazine is to raise awareness of atrial fibrillation in women and to help improve the quality of life for women with afib. Here are some of the stories you may want to check out:

* Are You Just a Hysterical Female? The emotional toll of atrial fibrillation.
* To Broccoli or Not To Broccoli…Managing Your INR
* Stressed or Stroke?
* Go Buy A New Bra! …and other things a woman should do before heart surgery

You can download the magazine, or listen to the replay of the teleseminar .