Atrial Fibrillation Patient Discussion Forums

Hey everyone! I'm raising money on IndieGoGo to fund my Documentary on Atrial Fibrillation. I believe we can help each other by a collective group of insights we've all learned while living with Atrial Fibrillation. I've had A-Fib for 8 years and want to bring people together who suffer the same. Please help support me by donating any amount and sharing this page to the masses with social media. Every little bit helps and will allows me to educate someone who suffers from A-Fib. Thanks! http://igg.me/p/53222?a=328357

I passed out on a stress test ( not a good idea ) last april, and was rushed to er. for a heart cath. Cath was clear and they gave me an event monitor for 30 days. We found afib, bradychardia, tachichardia and I am also having trouble with syncope and pre syncope upon exertion. I have no risk factors except for two sleep disorders, obstructive sleep apnea and organic circadian rhythm sleep disorder delayed sleep phase type. I know I have been suffering with these for atleast 20 years before they were discovered. The ep study also showed very high atrial flutter 9 about 350 bpm ) I am currently on cpap for sleep apnea full strength aspirin and diltiazem quick release 60 mg. I also take neurontin for spinal arthritis and flonase so i can breath on the cpap at night. Did I mention I am a 43 yo old male never smoked don't drink and was excercising daily. I also have trouble breathing when i lay down at night, does anyone have any ideas what to do next. Alot of my symptoms are gone but constant shortness of breath and dizziness when I walk or exert myself are making it difficult to work or do much of anything, oh and did I mention I can't eat at all or my weight skyrockets. Could this be the start of heart failure.Think maze, mini maze or third fatty pad surgery will help? Thanks.

I was diasgnosed with LAF over a year ago. Of course the cardiologist wanted me on Coumadin and some other pharaceuticals. I refused. The Afib slowly became more frequent. I was taking several supplements which seemed to help, but the incidents kept coming.

I am now on 5 grams of L arginine and 5 grams of Taurine, 600 mg Alpha Lipoic Acid, 300 mg Resveratrol. I also take 600 mg chelated magnesium and 200 mg potasium daily.

No more AFIB. Gone!

http://george-eby-research.com/html/taurine-l-arginine-arrhythmias.html

I too have CHF with an EF of 25% and have been on calcium channel blockers which do serve to control my heart rate, but Diltiazem is a negatively ionotropic drug which is is not appropriate for someone with a weak heart. I take full strength aspirin for an anticoagulant ( no side effects), CO Q 10 to strenthen the heart muscle, Metropolo (was on Coreg, but it did nothing) to lower my heart rate), and now take 0.5 mg of Xanax when needed which lowers my heart rate within 25-30 minutes into the 50's, 60's, and for the most part keeps my heart rate under 100bpm. I also take 60 mg Lasix to keep my lungs clear. Since taking Xanax I've felt more 'normal. Coumadin, I refuse to take because of the side effects (bleeding), which could cause a stroke from bleeding in the brain (my choice).

I have had A-Fib and Congestive Heart Failure for years and I am only 61 years old. I am on Coumadin and yesterday I fell backwards in my bathtub and I have a large red mark because I'm on Coumadin. I take Dilitiazem, Multaq, Digoxin, Coumadin, and Bystolic. I have had three shock treatments for my heart and I am still in Afib. The doctor said the only solution is to increase my Bystolic. He does not want to give me a pacemaker but as soon as I start walking my heart races out of control. I don't know what else to do. Can anyone give me any advice?

Hi Everyone,

I am looking for Atrial Fibrillation patients in Canada to conduct some face to face and phone interviews. Please contact me if you are interested in taking part in the study.

Cheers,
Taheer

Looking for Atrial Fibrillation Patients:
Are you on Pradax or Warfarin?
Attend our group discussion and get paid for your opinions!
$75 -$100 for 1 hour of your time.
Call us: 877-685-2239 x 201
Sign up: www.myfocusgroups.ca

I recently was diagnosed with A-Fib. I knew I had arhythmias but never had any attacks, until I was prescribed Azithromycin in Dec. 2009.. I was on a "statin" and mentioned to physician and pharmacist I did not think this an appropriate drug for me. The reply was "it is only for 5 days." I took the drug.

I had some funny spells of dizziness and escalating b.p. from Jan.-thru June 2010 but nothing showed up on EKG, etc. Even had a brain scan, and a CT neck through pelvis scan, nothing extraordinary, except signs osteoporosis, some artiery calcification, evidence of surgeries, all stuff already known on previous studies..

Then in July it was prescribed again and again the same dialog. When I took the 4th tablet, all hell broke loose. My b.p. when wild, my pulse wildly swung from 70-150. I thought I had O.D. on cough syrup or something. The ambulance was called and I went to ER which administered several drugs including oral clonidine and sent me home admonishing me to take the 5th tablet. Guess what! After I took the 5th tablet, it was back to ER.

It has been with me ever since. I am on too many drugs; have seen and cardio physi-electrologist (problemly not quite correct) highly recommended in AR. He hospitalized me and put me on Tikosyn which is blunting the attacks somewhat. But I still have them and mainly control them with clonidine in the manner of ER but do not take that drug regularly.

An ablation has been suggested but no details as to type. The last time I saw the same cardio; he never mentioned ablation but said I was on too much medicine and come back in 6 months.

He did not say which meds. I have COPD (non-smioker), osteoporosis (heriditary) and osteoarthritis, glaucoma, extra dry vaginal condition, with a little GERD thrown in and take Rxs for each of these problems
.
I had renal cell carcinoma in 1996 w/o reoccurrence to date.

I feel specialists, in general, never consider your health as a whole, and this particular specialist makes me feel like I was run through like horses.

I know my vagal nerve is somehow involved too because if I eat a large meal I have an A-Fib attack. If it is any clue, when I do have a really bad attack I void a large volume of urine, like over 1500cc.

Attention: Atrial Fib Patients & Caregivers - Paid Focus Groups in Ontario

We are conducting an important study among Cardiac Arrhythmia patients in order to hear your opinions and perceptions on the treatment and management of different heart conditions. The purpose of this study is for research only and your anonymity is assured.

These sessions are taking form of Focus Groups which are a group of people (usually 6-10 people) who gather in a room and share some opinions about a particular topic, in this case, medications of Atrial Fib. These are 90 minutes in length and would provide an honorarium of $100 to thank you for your time. These focus groups will be held on the evening of Wednesday September 16th or Thursday September 17th at one of our research facilities in North York.

It is very important to our research that you participate in this study. We would appreciate a response at your earliest convenience. To sign up for this study please send us an e-mail (with your contact info) to samir@estyle.biz or call (toll free) 1-877-685-2239 x2.

Thank you in advance for your taking the time to review our invitation and your prompt response.

Best regards,

eStyle Group
Contact for this study: Sam Dhalla
Ph.: 1-877-685-2239 x2
Email: samir@estyle.biz
Web: www.myfocusgroups.ca

I have A-fib and have had it for about 3 years. i have a pace maker to control my heart rate so it won't race. My A-fib was 7 -24. until July 3rd of this year, when a Dr. suggested i try amino acid stack. I just had my pacemaker checked and it showed no A-fib from the day I started taking the amino acid stack ( July 3) up to now