June 27, 2017

Research for US patients who have suffered a stroke or stroke-like event (includes afib), or their caregivers

UPDATE 6-30-15:  Thank you so much for your help. We’ve been asked to turn off this request as they have been swamped and have what they need. Have you, or a loved one, had a stroke or a stroke-like event (afib, chest pain, dizziness, palpitations, or fainting)? If so, you’re needed for some research. Find […]

VICTORY AF trial will study Phased Radiofrequency (RF) catheter ablation of atrial fibrillation

The VICTORY AF (Evaluation of Multielectrode Phased RF Technology in Persistent AF) Trial, sponsored by Medtronic, is studying patients undergoing a catheter ablation with Medtronic’s Phased Radiofrequency (RF) system. To learn more, see: VICTORY AF Trial Studies Phased Radiofrequency (RF) System for Persistent and Longstanding Persistent Atrial Fibrillation

Antidote for Eliquis Shows Positive Results

Here’s more good news about the upcoming antidote for Eliquis – see: Positive Results for Factor Xa Inhibitor Antidote: ANNEXA-A

Atrial Fibrillation Patients Needed for Paid Market Research Interviews (NYC)

MedQuery Inc, a national medical market research company that collaborates with pharmaceutical and medical device companies, is looking for people who have been diagnosed with Atrial Fibrillation to participate in a face to face interview research study in NEW YORK on October 7th and 8th. This study is aimed at improving AF treatment and understanding […]

Do you want to have a voice in what atrial fibrillation research gets done?

Are you in the San Francisco area, or can you get there? Please join us for the Kickoff Conference of the Health eHeart Alliance Patient-Powered Research Network on November 6–7. We will identify research needs of the afib patient community and potential ways to address those needs. To learn more about the alliance and the […]

Deaths from atrial fibrillation high despite use of anticoagulants

Today, at the European Society of Cardiology Congress in Barcelona, it was reported that even though 80% of atrial fibrillation patients who should be on anticoagulants (according to their CHA2DS2-VASc score) are on anticoagulants, death rates at one year are still high. Most of those deaths are due to cardiovascular causes. The risk factors predicting […]

Ablation and Surgery Clinical Trials Seeking Atrial Fibrillation Patients

While attending several recent medical conferences, we learned about some interesting procedure clinical trials that may be of interest to the afib patient community. To learn more, check out the following studies: The nContact CONVERGE Trial Will Study the Convergent Procedure for Treatment of Persistent Atrial Fibrillation The reMARQable Trial Will Study the nMARQ Multielectrode […]

Can You Be a Patient Reviewer for the Patient-Centered Outcomes Research Institute (PCORI)?

The Patient-Centered Outcomes Research Institute (PCORI) is seeking patients to review patient-centered research grant proposals and help select those that will be funded. To learn more about what is needed, see: Patient-Centered Outcomes Research Institute (PCORI) needs patient reviewers

Is Vigorous Long Term Endurance Sports a Risk Factor for Developing Atrial Fibrillation?

UPDATE: As of 6-10-14, triathletes with afib are still needed. Please contact Dr. Opondo (contact info below) if you can help. ——- The Institute for Exercise and Environmental Medicine (IEEM), in conjunction with UT Southwestern Medical Center, Dallas, TX, is seeking healthy individuals to participate in a research study. The purpose of this study is […]

Are you an atrial fibrillation patient in New Jersey or Eastern Pennsylvania? Can you help with this?

An agency is seeking help with a project. Here is their request: “Hi everyone – for those who live in the New Jersey / Eastern PA area, a pair of healthcare consultancies are going to be conducting a test of Afib websites and they are looking for participants. The website tests will be held in […]