September 17, 2014

Top Atrial Fibrillation Doctors Named to Inaugural StopAfib.org Medical Advisory Board

Today is a very special day for StopAfib.org founder Mellanie True Hills as she celebrates five years of being afib-free as a result of her minimally-invasive (mini maze) procedure. It is also National Atrial Fibrillation Awareness Month, so today is the perfect day to make a big announcement.

StopAfib.org is very pleased to announce our inaugural Medical Advisory Board. This board is made up of 19 of the world’s foremost electrophysiologists, surgeons, cardiologists, neurologists, epidemiologists, and researchers, all of whom are on the forefront of afib treatment. You will likely recognize many of them:

  • Lishan Aklog, MD
  • Emelia J. Benjamin, MD
  • Prof. John Camm
  • Riccardo Cappato, MD
  • Ralph J. Damiano Jr., MD
  • James R. Edgerton, MD
  • Kenneth A. Ellenbogen, MD
  • Steven C. Hao, MD
  • Peter R. Kowey, MD
  • Gregory YH Lip, MD
  • Nassir F. Marrouche, MD
  • Andrea Natale, MD
  • Prof. Bo Norrving
  • Douglas L. Packer, MD
  • Eric N. Prystowsky, MD
  • Vivek Y. Reddy, MD
  • Andrea M. Russo, MD
  • John H. Sirak, MD
  • David J. Wilber, MD

The Medical Advisory Board will provide a sounding board to help us continue to provide those living with atrial fibrillation with crucial information about afib and will help us address current and future atrial fibrillation treatments.

To learn more, see:

Comments

  1. James Martin says:

    I am looking for a AFIB specialist in the Washington, DC or Baltimore area. Does anyone have a recommendation

  2. Robert Bright says:

    In 2009 I was at work and was shocked plugging in a shoreline to a ambulance. I was thrown to the ground and was stupor for some time. After gathering my thoughts I reported to the Medic and my supervisor about what happened. I was told to rest and if any symptoms happen to seek treatment. within the next week I started pain in my back, side and respiratory distress. I again talked to my supervisor and medic was told to see a Dr. I mad an appointment to see my Dr. and she was out of the office so I say her co-worker. She found I had a enlarged heart (witch I didn’t have in previous x-ray 4 months prior) and set me up with a echo the fallowing week. by the time I went to the echo I was out of breath just walking from the car to the front door. During my echo the tech put me on o2 and left. Shortly after a Dr. showed up and told me I was in heat failure and my squeeze function was less then 15%. He admitted me to ICU and I was in the cath lab the next day. After the procedure he came in my room and said they found no problems in the cath lab and said he didn’t know why I was in A-fib. In talking I mentioned the shocking 3 weeks prior and he said that he felt that the symptoms and the time line fits that he fills the shocking was the cause of the A-fib. After 5 attempts of cardio conversion, a implant with AED, pacer & regulator and an ablation things are better and I’m doing better. my squeeze function is back to 40% and I filed for workers comp. My Dr. stated that they feel the time line and everything fits the shocking as being the fault but couldn’t be 100% so workers comp wont accept that the shocking was the cause of A-fib. They do recognize the shocking accident happened just not that the A-fib is the cause due to the shocking. I’m having troubles because I lost my 2nd job due to the heat problems I cant hold a CDL due to having a implant I cant pass my physical I get every year. My job as an EMT is in jeopardy because I’m having problems doing the work and I have no other trade. I contacted an Attorney and He has helped me to the point of needing another Dr. to look things over and give a 2nd option on justifying that the shocking was the cause. Problem is I don’t know where or how to find such a Dr. any suggestions?

    • Hi Robert,
      You may be able to find suggestions on our StopAfib.org Discussion Forum. To post or ask questions, you’ll need to register. Instructions for registering and getting started are here. I’m sorry to hear that you’re having these job difficulties due to your afib. I hope you can get things worked out quickly.

      Melissa

  3. Keith Busch says:

    I am a 66 year old male with AFIB. In my small Alaska town I had no access to a cardiologist. Now, I am spending part of year in NW & SW US. Can you recommend a top AFIB specialist doctor and/or clinic in Washington, Oregon, Arizona and/or New Mexico? Thank you.

    • Hi Keith,

      You may be interested in seeing an Electrophysiologist, an even more specialized cardiologist. You can search for providers in the areas of your interest on our website via our services locator (http://www.stopafib.org/find.cfm). Searching by zip code or by state may be of most interest to you. Good luck!

      Melissa

  4. Hi
    I have had 4 ablations 1 to fix the flutter and 3 to fix A-Fib, last one was on Sept 29, 2011 and looks like a fib is back. Is there any new proceedures out there? Help I want this fixed.
    Regards
    Diana

  5. Hello, not sure if anyone can help but thought it was worth a try. My mother currently has a pacemaker, and has has experienced 2 ablation surgeries to date and still is experiencing afib and now ventricular fib as well. We are looking for a great doctor that can help as we can’t seem to find a cure or treatment that works to date. Any suggestions?

    Jesse

  6. Alan Kligerman says:

    My AFIB started about 5 years ago. My Cardiologist put me on 100mg Toporol. For 5 years I went through Stress Tests and Echcardiograms to make sure my heart and arteries were in good shape. The doctor is fairly conservative taking my risk factors down. The doctor has me on one baby asprin and 40mg Pravastatin per day. In the past five years the attacks have worsened. The frequency of occurence has noticeably increased and the duration of each attack has increased. Since I am now 53 years old and anticipate many more good years in front of me, I’ve considered Ablation Surgery and University of Pennsylvania hospital. I don’t know to be more afraid of the long term affects of staying in AFIB (stroke risk) or the risk of the lengthy (6-8 hour) Ablation surgery. At least there is a procedure to help this horrible disease. Since January 2011 my Cardiologist put me on Sotalol (80 mg/day). This drug has not improved the situation. Quite honestly I was hopeful it would control things, but alas no such luck. I am worn out from the attacks both physically and mentally! Can you enlighten me on the short and long term risks of staying in AFIB vice the Ablation surgery. I am concerned that the surgery may help for just a few short years. I don’t like the idea of someone scarring my heart tissue. Please help!!!

  7. I HAD MY FIRST AFIB ATTACK 2/2006. i HAVE BEEN ON COUMDEN AND SOTALOL OFF AND ON SINCE THEN. MY DR. WHO IS JOHN HARVEY OF OKLAHOMA CITY TOLD ME THAT IT WOULD BE FOR MY BENEFIT IF I STAYED ON IT FOR THE REST. OF MY LIFE. I AM 78 AND LIKE TO BE ACTIVE BUT LOTS OF THE TIME I CAN,T. HE SAID THAT I AM SHORT OF OXYGEN IN MY BLOOD. I DO NOT CARE TO TAKE THIS MEDICINE FOR THE REST OG MY LIFE AS I PLAN A FEW MORE YEARS. IS THERE ANYTHING THAT WOULD BE A BETTER TREATMENT FOR ME? I TRULY APPRECIATE YOUR ADVICE. THANK YOU, SINCERELY,WANDA L. PENGELLY (4053793323) E-MAIL ABOVE 9/27/2010 10;30 A.M.

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